The National Palliative Care Research Center

Curing suffering through palliative care research.


Jori F. Bogetz, MD

Assistant Professor

Seattle Children's Hospital

Grant Year
Grant Term
2 years
Grant Type
Kornfeld Scholars Program

Project Description
A Novel Photo-Narrative Communication Intervention Among Parents of Children with Severe Neurologic Impairment in the ICU

Children with severe neurological impairment (SNI) account for 25% of pediatric admissions and approximately 50% of deaths in the intensive care unit (ICU) in the United States. Parental stress is high and exacerbated by inadequate opportunities to share information about their child’s quality of life and family values that guide critical medical decision-making with clinicians. The overall objective of this application is to refine and pilot the novel “What Is Important to Us” photo-narrative intervention that facilitates parent-centered communication about the child’s health and the parent’s strengths. This application builds on preliminary research and follows a stepwise approach for rigorous intervention development. Aim 1 will iteratively refine the intervention based on preliminary data and input from parent-clinician dyads. Aim 2 will pilot the intervention among parents of children with SNI and their clinicians in the ICU examining feasibility, acceptability, and preliminary efficacy in improving perceptions of therapeutic alliance and decreasing parent stress. This application aligns with additional training essential to Dr. Bogetz’ successful career development towards investigative independence including: 1) psychosocial intervention development; and 2) designing and conducting clinical trials. During this award, Dr. Bogetz’ will be supported by a highly successful mentorship team with expertise in studies among children with SNI and their parents, photo-elicitation, intervention development, and clinical trials. The environment in which Dr. Bogetz will complete this project is unparalleled, with access to coursework, research participants, and a rich integrative clinical research culture. This application is the first to develop a novel photo-elicitation communication intervention tailored to the unique needs of parents of children with SNI. At the conclusion of this award, Dr. Bogetz will have the training, scalable intervention, pilot data, and publications to allow her to successfully submit and undertake a K-level project testing the hypothesis that the communication intervention will improve parent and child outcomes.


Jori F. Bogetz, MD is an Assistant Professor of Pediatrics at the University of Washington School of Medicine and an attending physician in pediatric palliative care at Seattle Children’s Hospital. Dr. Bogetz received a BA degree in philosophy from the University of California, San Diego, and a medical degree from the University of California, Los Angeles David Geffen School of Medicine. Dr. Bogetz completed her pediatric residency training and an Academic General Pediatrics Fellowship at Stanford University. Following her pediatric training, she completed a Pediatric Hospice and Palliative Medicine Fellowship at Harvard University and Boston Children’s Hospital. Subsequently, Dr. Bogetz joined the faculty at the University of California, San Francisco as the lead pediatric palliative care physician. Dr. Bogetz then transitioned to the University of Washington as faculty in 2018, where she conducts research within the Pediatric Palliative Care and Resilience Lab and the Treuman Katz Center for Pediatric Bioethics. Dr. Bogetz is an elected member of the Pediatric Task Force for the Palliative Care Quality Collaborative (PCQC) through the National Coalition for Hospice and Palliative Care. Her research focuses on improving care for children with severe neurological impairment and their families through interventions that support high quality communication, caregiver psychosocial well-being, and family-centered care.